Resources for Meniere’s Disease

Resources for Meniere’s Disease

By NVRC News

Editor: Meniere’s Disease can be challenging, because it has a variety of symptoms and many of them change over time. Here’s NVRC with some suggested resources to help those with Meniere’e.

 

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Meniere’s Disease can cause fluctuating, slowly progressive hearing loss. Other symptoms include vertigo, TINNITUS, and a feeling of plugging or clogging in the ear. Symptoms and treatments can vary widely.

Getting Support

NVRC believes that some of the best information about a condition like Meniere’s disease, and support for dealing with it, comes from people who have already experienced it. These individuals have learned what is helpful and who the most knowledgeable and caring professionals are. Two resources for finding support are:

Vestibular Disorder Association (VEDA)
http://www.vestibular.org/support-groups.php

Vestibular Disorders Association, located in Portland, OR, has a list of support groups for all regions of the U.S. The only one in Virginia is located in Norfolk, and there is no support group in Maryland of the District of Columbia. Areas with no support group can get a kit from VEDA to help set one up. VEDA also has a list of resources such as physicians, physical therapists and audiologists. There are online discussion groups and a quarterly newsletter, On the Level. To call their 24-hour voice mail number: 800-837-8428.

The EAR Foundation
http://www.earfoundation.org/programs.asp?content=menieres_network

The EAR Foundation, located in Nashville, TN, has a Meniere’s Network for individuals with Meniere’s disease. Members of the Network will receive the name of a person-to-person support group that is nearest to their location and a year’s subscription a quarterly newsletter, STEADY Network News, with information about Meniere’s disease. There’s also a 28-page booklet with an introduction to Meniere’s Disease. Members help to educate health professionals and the public.

Other Resources

University of Maryland Medical Center

The University of Maryland has a Hearing and Balance Center. There’s a web page specifically for Meniere’s Disease:
http://www.umm.edu/otolaryngology/menieres_disease.html.

Here you’ll find information about symptoms, causes, the natural history of the disease and treatment. The treatments covered include a low-salt diet and surgery.

This website also has links to an article by Timothy C. Hain, MD and the Washington University School of Medicine:

Dr. Timothy C. Hain on Meniere’s Disease:
http://www.dizziness-and-balance.com/disorders/menieres/menieres.html

Dr. Hain, who practices in Chicago, IL, gives information on his website which includes recent research findings, the debate about the origin of Meniere’s disease, damage done by the disease, its incidence, how it is diagnosed, management of attacks, medication, reducing symptoms, surgery and surgical procedures, and emerging treatments. He states that although no cure is known, there are ways to manage the condition and control symptoms.

Dr. Hain lists treatments that he feels are slightly effective and a “last resort treatment regimen”. He also talks about how Meniere’s disease can affect an individual’s life and offers some dietary goals and drug considerations. There are many additional links and some good illustrations. We like that he recommends three support groups, although he only provides links to one and uses the old name of Hearing Loss Association of America.
Washington University School of Medicine
http://oto.wustl.edu/men/

The Department of Otolaryngology at the Washington University School of Medicine has a Meniere’s Page with information about several topics, including:
– Sources of literature on Meniere’s disease
– Compilation of treatments for Meniere’s disease
– Trends in Meniere’s disease research and treatment
– Results of survey into variation of Meniere’s symptoms with pressure changes
– Frequently Asked Questions
– Help with a low-salt diet
– Meniere’s at the Atkins diet
– Water softeners and a low-sodium diet
– Dependence of Meniere’s symptoms on the menstrual cycle in some women
– Learn about the inner ear fluids

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(c)2007 by Northern Virginia Resource Center for Deaf and Hard of Hearing Persons (NVRC), 3951 Pender Drive, Suite 130, Fairfax, VA 22030; www.nvrc.org. 703-352-9055 V, 703-352-9056 TTY, 703-352-9058 Fax. You do not need permission to share this information, but please be sure to credit NVRC